Sunday, May 18, 2014

But depression is an illness too...

I have a friend who has been completely bedbound for the past 8 years with severe M.E. J is by for the worst case most professionals will of ever come across including specialists and she been lucky to pull through several life threatening incidents all caused by M.E. Once she regained her speech and use of hands she started campaigning to raise awareness. J posts her journey on Facebook sharing her good moments and then the payback that comes from them. I would say understanding payback is the number one key to understanding M.E.

This week J achieved something she has spent 8 years working towards and posted a video of it on Facebook, later she posted a selfie showing the payback. Someone commented saying that these depressing selfies aren't doing anyone any good and J clearly needs therapy for her depression, then maybe other treatment could work. At this point I should add that J doesn't have depression. Replies backing up J's positive frame of mind were met with 'but depression is an illness too'.

Lots of people with ME get offended when people suggest they have a mental health problem or when professionals try to refer them for phycological help. The response often leads to people with MH problems thinking the ME patient is being insulting either by dismissing the suffering of problems like depression or that having MH problems is something to be ashamed of. This isn't the case but imagine...

You fell down the stairs and heard a snap, your leg is agony and you just know it's broken. You head straight to A&E in pain and wait to be seen. Finally a doctor comes along, offers you some paracetamol and quickly glances at you instead of doing a full examination, they then say someone will come and be with you shortly. You wait thinking your going to be taken to X-ray and then have your leg put in plaster. After a while a phycologist turns up. They talk to you and are sympathetic, they say they know how hard it is to have a painful leg and they want to help you. You are told you will be placed on the waiting list for 6 sessions of counselling. Your shocked and ask about an X-ray, you explain you heard the snap, that your leg doesn't look right and your just met with a sympathetic smile and a nod before they leave. Your confused but hold your breath waiting for the next person to see you, they come in with some paperwork and announce your being discharged. 'But what about my leg, I can't walk, how will I manage?', your pointed towards the Red Cross who will lend you some crutches until your at the top of the list for counselling.

How would that make you feel? Now for the comparison to severe M.E. Imagine you fell down the stairs and heard a crack, you look down and see a compound fracture-the broken bone is sticking up through the skin. An ambulance takes you to hospital but all that happens is the same as above. Your loved ones plead with the discharge nurse, they show information they have found saying that it needs to be operated on and the longer it's left the higher the chance of serious problems become. Again your met with a sympathetic nod and told that there is a support group led by a phycologist where you can talk to other people with broken bones protruding through the skin, if your loved one argues any more then therapy for them will be considered too. You have no choice but to go home, scared and worried for your future.

This scenario is happening all the time to so many people, it's wrong and that's why it makes people with ME (and other conditions) twitchy when it's suggested they have MH problems. The situation is dangerous and ironically can cause long term emotional scars. The flip side to this too is there are a limited amount of therapy places available and instead of being used to help those lost deep in depression they are being wasted by being pushed on people who don't need them.


Tuesday, May 13, 2014

National Yogurt Week

May 19-25 is National Yogurt Week and the Yogurt Council is asking bloggers to share their favourite recipes as a celebration of all things yogurt.

I've always liked yogurt but in recent years I've learnt how nutritious it really is. There are lots of adverts on TV for special drinks containing probiotics, these are often expensive and packed full of sugar but did you know yogurt naturally has probiotics. Marketing tells us it helps 'regulate the digestive system' which it can do, but research has shown the bacteria in our intestines also plays a big part in our immune and neurological system, pretty cool for something that tastes lovely!

My favourite way of eating yogurt at the moment is with oats and fruit. Oats contain prebiotics and we all know the benefits of fruit. Here is what we do,

3 cups of oats (I'm normally a grams and oz kinda girl but have cup measures and find it works well for this)
1 cup of milk (any kind)
3 cups of natural yogurt

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Optional: Linseed or sunflower seeds
Jam/purée
Selection of fruit

Combine oats, milk, seeds and yogurt together and give it a really good stir. Add your chosen fruit, my favourite is raspberries and my Mums is mango and stir carefully. You can add a teaspoon of jam or fruit purée if you like things sweet. Put in an air tight container and leave over night. It will last a few days and is lovely as breakfast, desert or a snack.


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Raspberry with no added jam


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Fresh raspberry with a teaspoon of raspberry jam

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Mango pulp is a great addition


Check out loveyogurt.org for more information or @loveyogurtuk on Twitter and Facebook


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Wednesday, May 7, 2014

Twilight and stockings

As I've been recovering from my hospital stay and my Nan's funeral I've mostly just been resting and listening to audiobooks. Many years later than everyone I finally got around to downloading Twilight, it didn't appeal at all but I'm hooked! I've listened to all 3 in a short space of time but am making myself relisten to them before downloading the 4th.

The other thing I've been doing is some sewing. I do just a tiny bit each day but it's amazing how it can come together. I ignored the instructions and did most of the sequin and beading first which has really speeded the process up. This is how it currently looks;

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The kit is made by Bucilla and called 'Joy Snowmen', if your in the UK then the best place is www.stitcher.co.uk or Amazon.